Rare diseases affect millions of people worldwide, yet many remain unaware of their challenges. As someone who has witnessed the struggles first hand living with a rare condition, I understand how isolating and difficult life can be for patients and their families. Rare Disease Day 2026 offers a vital opportunity to raise awareness, improve understanding, and foster support for those affected. This post explores why this day matters and how it can make a real difference. Patient holding a...

On a bright day in Atlanta, March 11, 2025 a remarkable event unfolded at the Georgia State Capitol that brought together voices of...

On March 7th, Emory University hosted a remarkable event in conjunction with Rare Disease Day, bringing together advocates, educators,...