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"The North Star is a Powerful Symbol of Guidance and Direction that Reminds Us to Stay True to Ourselves and Follow Our Own Path, Even in the Darkest of Times."

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Our goal is to provide free events for the Rare Disease Community, however we are ramping up funding with fundraising events to provide Rare Wishes. 

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Who We Are

Rare Wish is a nonprofit with the mission to improve the quality of life for rare families by granting wishes, funding clinical innovation, and offering free healthcare tools. 

 

This image describes our goals and commitments to the rare disease community.
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1 in 10 Individuals Will be Diagnosed with a Rare Disease in their Lifetime.

There are Currently More than 7,000 Identified Rare Diseases Impacting More Than 300 Million People Worldwide.

Any Disease Impacting Fewer Than 200,000 People in the US is Considered Rare.

25 to 30 Million Americans are Living with a Rare Disease.

Many Rare Diseases May Result In the Premature Death of Infants or Can be Fatal in Early Childhood.

All Pediatric Cancers are Rare.

There are More Than 500 Rare Cancers.

More than 90% of Rare Diseases are Without an FDA Approved Treatment.

Rare Diseases Affect an Estimated 350 Million People Worldwide.

* Statistics from the National Institute of Health

Ways We Help

The Focus of Our Efforts

Rare Wish's 1st Recipient, Beck

Helping Those Who Need Us Most

Rare STRIDES and Rare Wish at the annual Glow in the Dark Concert.
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Resources

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Become a State Leader

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Grant a Wish

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Sunny the Rare Bear

Adopt a Rare Bear Today! 

Sunny the Rare Bear started out as a gift to one of our staff members at Rare Wish. There is an old quote by Theodore Woodward, professor at the University of Maryland School of Medicine: "When you hear hoofbeats think of horses, not zebras." This quote coined the term zebra which is used today to describe a rare disease.

Every rare bear will display zebra stripes in honor of the rare community. For each bear that is "adopted" we will distribute to a child or adult with a rare disease to provide hope. Adopters will receive a certificate of adoption. 

 

Each bear displays a QR tag. When the code is scanned a donation can be made to grant another wish for a child or adult with a rare disease so it keeps giving back all year long!

 

Sunny the Rare Bear is looking for volunteer bear makers and sponsors. If you are a medical team member or facility interested in having a rare bear given to your patient, please contact us for details.

If you would like to contribute to our Amazon Wish List.

If you would like to nominate someone to receive a rare bear, apply below.

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Sponsors:

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Sponsorship Opportunities

Rare Wish is a nonprofit organization that is dedicated to granting wishes to children and adults who have been diagnosed with a rare disease and funding clinical innovation to support patients and families impacted by rare diseases. As a non-profit organization, Rare Wish relies heavily on the generosity of sponsors and donors to grant wishes and foster innovative programs and services for these deserving individuals.

Sponsorships are so important to Rare Wish because they provide the necessary funds to grant wishes and make a difference in providing trustworthy resources, medical education, and ongoing clinical innovation. Without sponsorships, Rare Wish would not be able to continue its mission of bringing joy, hope, and happiness to children and adults; many are facing some of the toughest challenges of their lives.

Sponsors also play a key role in building awareness and support for Rare Wish. By sponsoring an event or program, sponsors help raise awareness about the important work that Rare Wish does, and they help encourage others to get involved and support the organization too.

Overall, Rare Wish depends on and appreciates sponsorships because they are essential to the organization's ability to fulfill its mission and make a positive impact on the lives of children and adults who deserve quality of life and excellence in all areas of healthcare.

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