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Our Purpose
What We Do
Rare Wish exists to bring hope, dignity, and visibility to the rare disease community through compassionate programs designed to meet emotional, practical, and advocacy-driven needs.
Meaningful Wishes
We create intentional wish experiences that bring joy and emotional relief — reminding rare warriors they are seen, valued, and supported.
Comfort & Support
Through Sunny the Rare Bear and curated support, we provide tangible comfort during hospital stays, treatments, and long-term care.
Advocacy & Visibility
We amplify rare voices through education, storytelling, and partnerships — because visibility saves lives, builds understanding, and creates change.
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"Every rare journey
deserves comfort and care."
Meet Our Rare Bear
Sunny Brings Love & Sunshine to Those Who Need It Most
When Rare Wish CEO Trena Myers was grieving the loss of her father, a friend sent her a bear. That simple act of kindness changed everything. Together with founder Beth Nguyen, Sunny the Rare Bear was born — because sometimes, the most powerful medicine is knowing someone cares.
Sunny the Rare Bear – Nominations Paused
At this time, we are pausing new nominations to receive Sunny the Rare Bear.
In less than 90 days, we were able to make and place 10 Sunny Bears into loving homes — and now, we have a waiting list of families hoping to welcome one too. To continue, we are seeking a volunteer (or small group) to help us sew and assemble new bears so that more rare warriors can experience the joy of Sunny.
Once we have additional volunteer support in place, we will reopen the nomination window and begin matching Sunny Bears with their new families.
💜 If you or someone you know is interested in helping us #MakeRareVisible by volunteering your time and sewing skills, please contact us at info@rarewish.org.
Thank you for your patience, support, and love for Sunny the Rare Bear!
We placed 10 Sunny Bears in loving homes in under 90 days. Families are still waiting. Every donation brings Sunny to a new home.
Real Voices. Real Impact.
The Community Speaks
"Connecting with other families is so uplifting! Sharing experiences and support makes this journey a little easier and a lot brighter."
Lift Each Other · Community Event
"Every time we deliver a Sunny the Rare Bear, those smiles remind me that community support can truly brighten a tough journey!"
Spread Joy · Rare Wish Event
How You Can Help Right Now
We're Building Toward
Something Bigger.
Our wish applications are currently paused — but your support today is exactly what brings us closer to saying YES again.
Please know: We will keep all applications already received on file. Once additional funding becomes available, we will review those applications first before reopening the window for new requests. Our heart and mission remain focused on giving back to the rare disease community — not requesting from it. Thank you for your patience, understanding, and continued support as we work together to #MakeRareVisible.
Help Us Reopen Wishes
Every dollar donated moves us closer to the moment we can say YES to a new wish. Be the reason we reopen our doors.
Become a Sponsor
Your brand alongside our mission sends a powerful message — and helps fund the programs that change lives. Join the Rare Circle today.
Sunny Needs Your Hands
We need volunteers who sew, craft, or simply want to be part of something rare. Help us build more bears so more warriors can feel the love.
Spread the Word
Share our story. Tag a friend. Post with #MakeRareVisible. Awareness is free — and it opens doors that funding alone cannot.
OUR IMPACT SO FAR
"Every wish, every moment of comfort, and every act of visibility creates meaningful change for families navigating rare disease journeys."
Your donation funds the work that fills the gap.
Founding Benefactors
Build the Future of Rare Support.
Leave a
Legacy of Visibility.
Rare Wish is entering a pivotal growth phase — expanding programs, increasing reach, and strengthening infrastructure to better serve the rare disease community nationwide.
SPONSORSHIPS
Join the Rare Circle
Sponsoring Rare Wish isn't just a logo placement — it's a statement that your brand stands for something.
FOUNDING SPONSORS
MAKE A DIFFERENCE FOR RARE LIVES
Get Involved
Whether you give, volunteer, advocate, or sponsor — you are part of making rare visible.
Volunteer
Sew bears, photograph events, write content, or show up for the rare community. Every hand counts.
Donate
Give one time, give monthly, or sponsor a wish. Every gift — no matter the size — makes an impact.
Founding Benefactor
Provide leadership-level funding to accelerate Rare Wish's impact during our foundational growthy phase.
Corporate Sponsorship
Align your brand with a mission that matters. Join the Rare Circle and leave a legacy of visibility.
You Are Rare. You Are Visible. You Are Not Alone.
The zebra is the symbol of rare disease — because when you hear hoofbeats, sometimes it really is a zebra. We see you.
Free Resources
Share Our Mission with Your Community
Download our free flyers to share Rare Wish with families, medical teams, and community partners. Enter your email and we'll send them straight to your inbox — plus keep you updated on how your support is making a difference.
FREE DOWNLOAD
RARE WISH OVERVIEW
Our Mission & Programs Flyer.
Share who we are, what we do, and how your community can get involved. Perfect for families, advocates, and supporters.
FREE DOWNLOAD
Rare STRIDES® & Code Rare®
Medical Teams & First Responders.
Share Code Rare® with nurses, doctors, and first responders who work with rare disease patients every day.
Make a donation
Be the Reason a Wish Comes True
Every dollar you give goes directly toward granting wishes, delivering Sunny Bears, and building hope for rare families who need it most.
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