Blog | Rare Wish

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Understanding the Importance of Rare Disease Day 2026 and Its Impact on Patients

Rare diseases affect millions of people worldwide, yet many remain unaware of their challenges. As someone who has witnessed the struggles first hand living with a rare condition, I understand how isolating and difficult life can be for patients and their families. Rare Disease Day 2026 offers a vital opportunity to raise awareness, improve understanding, and foster support for those affected. This post explores why this day matters and how it can make a real difference. Pati

trenamyers

Mar 43 min read

Unveiling the Unseen: A Day of Impact and Empowerment at Georgia State Capitol with Rare STRIDES and Georgia Life Sciences

On a bright day in Atlanta, March 11, 2025 a remarkable event unfolded at the Georgia State Capitol that brought together voices of...

trenamyers

Mar 15, 20254 min read

Unveiling the Extraordinary: Beth Nguyen's Uncharted Path as a Rare Patient and Nurse at Emory University's Rare Disease Day

On March 7th, Emory University hosted a remarkable event in conjunction with Rare Disease Day, bringing together advocates, educators,...

trenamyers

Mar 14, 20254 min read

Rare Wish Topped off the Holidays with Top Golf

Celebrating the Rare Disease Community at Top Golf On December 15, 2024, the Rare Wish team, including Founder Beth Nguyen, CEO Trena...

trenamyers

Mar 1, 20252 min read