Rare diseases affect millions of people worldwide, yet many remain unaware of their challenges. As someone who has witnessed the struggles first hand living with a rare condition, I understand how isolating and difficult life can be for patients and their families. Rare Disease Day 2026 offers a vital opportunity to raise awareness, improve understanding, and foster support for those affected. This post explores why this day matters and how it can make a real difference. Pati

On a bright day in Atlanta, March 11, 2025 a remarkable event unfolded at the Georgia State Capitol that brought together voices of...

On March 7th, Emory University hosted a remarkable event in conjunction with Rare Disease Day, bringing together advocates, educators,...

Celebrating the Rare Disease Community at Top Golf On December 15, 2024, the Rare Wish team, including Founder Beth Nguyen, CEO Trena...

Networking for Innovation: Rare Wish and Rare STRIDES at Georgia Life Sciences Event On February 11, 2025, the vibrant community of...

Meet Trena Myers: The Inspiring Rare Wish CEO and Host of The Royal Buzz Podcast In the world of pageantry, advocacy, and positivity, one...

Do you ever feel like you are wearing a mask of grit and determination and yet behind closed doors suffer unbearable hardships? Beth...

Hello, #iamhope, I am Trena Myers, the CEO of Rare Wish. I want to be real with you and share my stories and journey with the hopes that...