About Us
Creating Meaningful Impact
Since our launch in 2023, the team at Rare Wish has worked tirelessly to promote our cause. We are fortunate to have volunteers and staff from all walks of life who bring their unique expertise and resources into everything we do.
We are a sister organization to Rare STRIDES which was established in 2014. We felt the need to split into two separate entities so we can best serve the rare disease community.
While there is always more that can be done, there is no doubt that we are making a significant impact. We don’t measure our success through just facts and figures, but through happy faces and heartwarming feedback. See how you can become part of the difference.
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Our Team
The Faces of Our Organization
Beth Nguyen, RN Founder/Volunteer
A registered nurse bringing compassionate clinical insight and a deep commitment to patient-centered care. Beth's heart for service and belief in the power of human connection shapes everything Rare Wish does.
Trena Myers, MBA CEO
A national rare disease advocate, speaker, and nonprofit leader committed to ensuring rare disease journeys are seen, supported, and valued. Ms. Elite United USA · Author · Founding CEO of Rare Wish.
Our
Board
Rare Wish Executive Board
President: Matt Conway
Treasurer: Ovi Gologan
Secretary: Position Open
All of our staff are comprised of volunteers.