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About Us

Creating Meaningful Impact

Since our launch in 2023, the team at Rare Wish has worked tirelessly to promote our cause. We are fortunate to have volunteers and staff from all walks of life who bring their unique expertise and resources into everything we do. 
We are a sister organization to Rare STRIDES which was established 6 years ago. We felt the need to split into two separate entities so we can best serve the rare disease community.


While there is always more that can be done, there is no doubt that we are making a significant impact. We don’t measure our success through just facts and figures, but through happy faces and heartwarming feedback. See how you can become part of the difference.

Our Team

The Faces of Our Organization

Beth Nguyen founder of Rare Wish is sitting in a chair looking at a toy zebra.
CEO, Trena Myers headshot
john winstanley, community relations director headshot

Beth Nguyen, RN Founder/Volunteer

Trena Myers, MBA
CEO

Community Relations Director

John Winstanley

Our 
Board

Rare Wish Executive Board

President: Matt Conway

Treasurer: Ovi Gologan

Secretary: Jennifer Wilging

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